Support and Resources

For More Information

If you want more information about FIRAZYR:

Materials available for download:

FIRAZYR Patient Information Booklet

FIRAZYR Self-Administration Guide – for adults

FIRAZYR Administration Guide – for children and adolescents (2 to 17 years), and their caregivers

FIRAZYR Travel Letter

Children’s book entitled “FIRAZYR – Getting to know your HAE and your FIRAZYR”

FIRAZYR patients receive personalized support from one consistent, seamless program.

The Patient Support Program for FIRAZYR offers:

ENROLMENT

into the patient support program

ASSIGNMENT OF A OnePath® CARE MANAGER

single point of contact for you, your caregivers and your team of healthcare professionals

REIMBURSEMENT SUPPORT

OnePath® will help navigate support and access to medication and ancillary supplies through private and public insurance companies, and potentially provide financial assistance and bridging

HOME DELIVERY

of FIRAZYR

INJECTION TRAINING

for appropriate patients who are starting self-injection

ONGOING EDUCATION

and support

REPORTS

to your team of healthcare professionals

TOLL-FREE SUPPORT LINE

Patients enrolled in the OnePath® Program have access to a dedicated OnePath® Care Manager via a toll-free telephone support line.

1‑844‑MY1‑PATH (1‑844‑691‑7284)

The OnePath® Program is available Monday through Friday from 8:00 AM to 8:00 PM EST.

Additional Resources

HAE Canada

HAE Canada is a patient group formed in 2010 to work with physicians, nurses, and other healthcare related professionals. All HAE patients in Canada are encouraged to join this group. There is no membership fee and you will find many helpful resources. For more information, visit www.haecanada.net or https://www.haecanada.net/fr/.

L’angio-oedème héréditaire du Québec (AOHQ)

The purpose of L’angio-oedème héréditaire du Québec is to contribute to improving the health and quality of life of people with HAE. In addition to raising public awareness of this disease, the organization’s mission is to train medical staff so that they can make a correct diagnosis, and thus better direct patients to specialists. For further education, visit https://www.aohq.ca/ or toll free 18555614563.

Canadian Hereditary Angioedema Network (CHAEN)

If you are looking for a CHAEN physician and/or clinic, please visit: https://chaen-rcah.ca/patient-resources/.

HAEi

HAEi is the International Patient Organization for C1 Inhibitor Deficiencies (https://haei.org/) The website contains help, support, and educational information for patients.